Educational intervention to improve the quality of life of adolescents with genodermatoses

Abstract

The genodermatoses, are processes whose main manifestations reside in the skin and the annexes, having as common element that all are inherited being transmitted from an individual to another in their descendant. The quality of the patients' life is affected extraordinarily, experiencing to reject them and the social stigmatization. In The Tunas, Cuban county, the registrations of the national program of diagnostic, attention and prevention of genetic diseases and congenital defects, they evidence that 24.67% of the diagnosed patients of genetic diseases, correspond to the genodermatoses. With these results is carried out this study with the objective of evaluating the implementation of a strategy of educational intervention directed to elevate the quality of adolescents' life with genodermatoses. The strategy was taken I end up in three stages: diagnostic, implementation and evaluation. 85 adolescents, their family and nearer school circle were studied. It was evaluated the reached knowledge, the achieved attitudes, the state dermatologic and the quality of life. The percent calculation was used to evaluate the results of the implementation of the intervention strategy and half arithmetic with a scale of values to evaluate quality of life. The strategy of implemented educational intervention showed satisfactory results increasing the level of knowledge, being achieved positive attitudes, improvement of the state dermatologic and the quality of life reached good levels.